The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
GIST Expert Dr. Jason Sicklick & Team Release New Study on What Drives GIST
In a recent study, researchers at University of California San Diego School of Medicine identified new therapeutic targets that could lead to new treatment options for patients. The study, published in the February 18, 2021 online edition of Oncogene, found that specific cell-to-cell communication influences GIST biology and is strongly associated with cancer progression and metastasis.
LRG Webcast Series: hPPGL Syndrome – a Misnomer with Consequences
Dr. Annes reviewed the hPPGL Syndrome with particular focus on the underlying genetics basis and related tumor risks.
It’s Time: The Life Raft Group Biomarker Testing Campaign – MaKayla Evans Talks Testing
Understanding the role of mutations and biomarker testing is one of most important things patients must learn. Uncovering the driving force behind each individual’s tumors is not just important, it is critical. This video talks about why it's important.
Caregiver of the Month for February: Bonita Morgan
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Bonita Morgan shares her story.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Resources List
Understanding the role of mutations and biomarker testing is one of most important things patients must learn. Uncovering the driving force behind each individual’s tumors is not just important, it is critical. Here is a Resource list for GIST and other cancers.
It’s Time: The Life Raft Group Biomarker Testing Campaign – LRG Patient Registry Video
Understanding the role of mutations and biomarker testing is one of most important things patients must learn. Uncovering the driving force behind each individual’s tumors is not just important, it is critical. This video talks about why it's important.
It’s Time for Action in 2021
It is time to stop talking and take action to assure patients get tested. The goal of the 'It's Time' campaign is to increase and improve the understanding of biomarker testing in the cancer community and get patients tested.
NCCN Shares New Guidance Principles for Vaccinating People with Cancer Against COVID-19
NCCN repost - Leading cancer and infectious disease experts offer preliminary advice on how to quickly, safely, and efficiently protect vulnerable patients from COVID-19; with more updates to come.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
