The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
LRG Featured in the MyPART Minute
The LRG was featured in the MyPART Minute April edition, in the Advocacy Spotlight section, which detailed our mission, core values, and the story of our collaboration with the National Institutes of Health to create the annual NIH Pediatric and Wildtype GIST Clinic.
How to Balance Your Diet During the COVID-19 Pandemic
Nutritional status plays a very important role in the prevention and treatment of contagious and non-contagious diseases. In the frame of a health contingency, the use of strategies that strengthen our nutritional status and immune system is essential.
Survival in Advanced GIST Has Improved Over Time – LRG Science
In this issue of LRG Science, the relationship between overall survival (OS) and access to treatments after imatinib failure is explored. In 2019, the LRG published this research in Clinical Sarcoma Research and this issue includes commentary from experts. LRG Science endeavors to be a respected source of timely, science-based information built on real world data designed for those whose focus is to increase patient survival from GIST and other cancers.
FDA Approves Use of Two Anti-Malaria Drugs for Coronavirus
As the number of people who have fallen ill grows, the FDA announced approval if the use of two anti-malaria drugs for coronavirus.
Coronavirus News/Updates
This page is a collection of information for our patients on COVID-19 and the coronavirus crisis of 2020 some of which was written by the LRG for patient support and some authored by outside authorities and curated by the LRG.
The Challenge: Surviving GIST in the Time of COVID-19
The Coronavirus outbreak has affected everyone across the globe in so many ways. In times like these, we must to continue to support each other as our mission to help enhance the survival and quality of life for GIST patients intensifies. Partner with us today by donating to support the continuation of this mission.
Expressing Our Thanks to Our GIST Specialists
Lost in the relentless coverage of the COVD-19 pandemic are the many cancer patients trying to survive and needing to access quality medical care. Our gratitude goes out to all those physicians that have gone above and beyond to serve our GIST patients during this time.
Experiencias de Italia con COVID-19
Nuestro colaborador global, Alianza GIST comparte el artículo "El tratamiento de pacientes con cáncer y la contención de COVID-19: experiencias de Italia "por el Dr. Giuseppe Curigliano publicado en el ASCO Daily News. Este artículo también está disponible en inglés.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
