The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Creating Your Personal Cancer Survival Plan
This Personal Cancer Survival Plan is based upon practical observations gained from my experience [Norman Scherzer] of keeping my wife alive with a rare cancer called GIST (Gastrointestinal Stromal Tumor) for 22 years after she was given six months to live, and hundreds of patient medical histories and stories that come across The Life Raft Group forums and medical databases.
GDOL Portland 2019 Photo Gallery
The Life Raft Group held a GIST Day of Learning (GDOL) in Portland, at Oregon Health & Science University (OHSU), on [...]
Portland GIST DO IT Walk
A GIST DO IT Walk was held prior to GDOL Portland 2019 at OHSU on 6/22/2019. GDOL participants walk to raise awareness and funds for GIST education.
New Horizons 2019 Photo Gallery
This is the photo gallery for the New Horizons GIST Conference for 2019 held in NJ and hosted by the Life Raft Group. This international meeting aims to unify the global GIST patient advocacy community with key opinion leaders and facilitate ways to increase survival worldwide.
Patient of the Month for June: Piga Fernández
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our [...]
Salud con Datos 2019 Photo Gallery
These are some memorable photos from Salud con Datos 2019. On May 7th, representatives from Colombia, Chile, Mexico, and The Life [...]
New Horizons – International Focus on the Power of Real World Data to Enhance Advocacy Efforts
International advocates meet in Wayne, NJ, at the annual New Horizons GIST Conference to discuss scientific updates, regional issues, and unmet needs for the global GIST community in May 2019.
The First GIST DO IT Walk NJ – Held in Loving Memory of Ted Wolf
On May 4, 2019, The Life Raft Group held its first GIST DO IT Walk in New Jersey, at Verona Park. Despite the drizzle, over 50 people were in attendance and over $18K was raised for #GISTresearch.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
