The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
International Collaborations – Salud con Datos 2019
International collaborations accelerate patient advocacy and affect policy changes and treatment protocols On May 7th, representatives from Colombia, Chile, [...]
Fifth Annual Water of Life Fundraiser 2019
Dr. Matthew Lurin’s Fifth Annual Water of Life Whisky fundraiser was held on May 16th at the Manhattan Center [...]
Update on a New Clinical Trial Offered to Eligible GIST Patients
The INTRIGUE study is a Phase 3 clinical trial testing the investigational drug ripretinib (DCC-2618) for patients living with GIST that are no longer on imatinib due to progression or intolerance.
On the Speaking Circuit with The LRG
Norman Scherzer was invited to speak at three prestigious events this spring; participating in a roundtable discussion, presenting a cancer survival [...]
GIST Day of Learning – GDOL Tampa
The Life Raft Group held a GIST Day of Learning (GDOL) in Tampa, at Moffitt Cancer Center, on May 16th, 2019. [...]
One Voice Against Cancer (OVAC) Advocates for Cancer Patients
OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified [...]
The LRG GIST Peer Support Program
[Please note that GIST Peer Support program has been renamed the GIST Mentor Program 11.5.19]. Last month, we posted information on our new program to support our members. The GIST Peer Program is an additional support system to help patients and their caregivers through a very difficult time in their lives. Why? They may just be finding out they or a loved one has GIST, or they are experiencing a recurrence and they want to be able to talk with someone.
ISPOR 2019
The Future of RWE & Improving the Quality of Patient Survival Two members of The LRG staff recently attended the annual [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
