The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Novartis Gains Approval for Panobinostat
Novartis Pharmaceuticals recently received FDA approval for panobinostat, a blood cancer drug that targets multiple myeloma. This was a surprising ruling, [...]
San Diego GDOL: Q&A
On January 24, the first GDOL (GIST Days of Learning) of 2015 brought together nearly fifty GIST patients, caregivers, family members [...]
Clinical Trial Data Sharing: LRG’s Model for Collaboration
A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that [...]
Advocating for Change: Cancer Breakthroughs Needed
A recent article in Forbes reports that although we are witnessing a time of historic breakthroughs in cancer treatments, we are lagging [...]
New Packaging For Gleevec In The U.S.
You may have noticed a new look for Gleevec when you refilled your 400-mg prescription.Novartis has introduced new packaging in the U.S. [...]
Cancer Patients Rarely Request Unnecessary Tests
In spite of some medical professionals' claims to the contrary, cancer patients rarely request unnecessary tests or treatments according to a [...]
LRG State Leaders Connect
On Wednesday, February 11, the Life Raft Group’s state leaders had their first opportunity to gather virtually and discuss best strategies [...]
LRG Accepting Applications For Third Virtual GIST Tumor Board
The Life Raft Group is opening up the application process for our third Virtual GIST Tumor Board, date to be determined. This [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
