The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Additional Programs of The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Patient of the Month – April 2025: Jimit Mody
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jimit Mody shares his story.
Patient of the Month – March 2025: Rob Taylor
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Rob Taylor shares his story.
New Collaborative Study on Genomic Testing in SDH‐Deficiency GIST
The LRG and the Pediatric & SDH-Deficient GIST Consortium published a paper this February on Genomic Testing in SDH-deficient GIST.
Patient & Caregiver of the Month – February 2025: Becky & Rich Owens
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Becky & Rich Owens share their story.
John Poss Remembered through Memorial Fund
Every donation furthers GIST research, fuels clinical trials, and provides critical support for patients and caregivers navigating GIST.
LRG Staffer Plans a GIST Ride Across America
LRG Staffer Jerry Call embarks on a cross-country motorcycle trip to celebrate his 70th birthday & reconnect with the GIST community.
Newest Board Member Brings a Fresh Perspective to the LRG
Dr. Joseph Germino, retired medical oncologist who most recently served as the VP of Medical Affairs at Bayer, joins the LRG Board of Directors.
The LRG Strategic Plan
The Life Raft Group is expanding its impact, using data and collaboration to drive progress in GIST and rare diseases.
GLOBAL PARTNERS & AFFILIATIONS
