The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Hope for the Holidays 2025
Through our Hope for the Holidays campaign, you’ll hear from GIST patients who once felt alone and afraid, but found connection and support. Listen, learn and donate!
More Tips for GIST Patients Navigating the Holidays
The holidays can be challenging for GIST patients, but planning for travel, food, social moments, and emotions can make the season easier.
Patient & Caregiver of the Month – November 2025: Sammy & Ina
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Sammy and Ina share their story.
This Holiday Season, Don’t Apologize
The holidays can be a beautiful time, but they can also bring an undercurrent of exhaustion, guilt, and pressure to “be okay”.
Life Raft Research Award Recipients 2025
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
Patient Perspective on Testing – Survey Highlights
Survey highlights show that most GIST patients receive mutational testing, but awareness of ctDNA testing remains low despite strong interest.
Health Equity Council: Continuing the Legacy of a Beloved Member
The Life Raft Group’s Health Equity Council honors Martina’s legacy while working to close care gaps and expand patient access to resources.
Remembering Martina Will
Martina Will, a loving mother and dedicated advocate, battled GIST with strength and grace, leaving behind a lasting legacy of resilience, and devotion.
GLOBAL PARTNERS & AFFILIATIONS
