One of those things is to run a marathon. At the Battle of Marathon, the legend of the runner Pheidippides was born, as his running from Marathon to Athens declaring "We are victorious" and dying of exhaustion immediately. It was hailed as the farthest a man could run before he died.
From June 15 through June 17, 2011, the National Institutes of Health (NIH) hosted the seventh annual Pediatric and wildtype GIST Clinic. Ten patients from across the United States and Canada attended, accompanied by family members or friends. In total, 80 patients have participated in the NIH Pediatric GIST Clinic, 75 of whom have wildtype GIST. Thirty-five percent of patients have pediatric GIST, currently defined as diagnosis before the age of 19.
Written by Jennifer Wright April, 2011 - This article is a summary of “Defects in succinate dehydrogenase in gastrointestinal stromal tumors lacking KIT and PDGFRA mutations” in the Proceedings of the National Academy of Sciences [...]
The perilous world of dating can become even more complicated when you are living with cancer. This article is the second in a two part series on dating with a diagnosis of GIST. Part one, which was published in the February 2011 issue of the LRG newsletter featured experiences from three GIST survivors, Jason DeLorenzo, Eric Tan & Estelle Lecointe on the difficulties approaching the subject of GIST while dating. Part two covers tips on approaching the subject, a success story and new ways to meet people.
“I learned a lot and feel so much better having the NIH team as an additional resource, “said LRG member, Anne Pacifico.
“Dating with a GIST leads to two major difficulties,” says Estelle Lecointe, Pediatric GISTer and founder of Ensemble contre le GIST, “The first one being to announce the disease, the second one to explain the induced collateral damages and personal sacrifices. It’s very difficult to find the right time to bring these topics in the discussion as these aspects can be very scary for someone who’s never faced this kind of situation..."
Here is a video from the NIH Pediatric & Wild-type GIST Clinic.
My name is Stacey McAully and for those of you who don't know, I was the first pediatric diagnosis of GISTs in Scotland. I have had 2 serious surgeries and was on Gleevec for [...]
The fourth bi-annual NIH Pediatric & Wildtype GIST Clinic at the National Institutes of Health on January 20 was, once again, a great success. Click here to view a video or listen to a podcast of Dr. [...]
This presentation at the 2009 Connective Tissue Oncology Society meeting by Dr. Jonathan Trent offered several new observations for patients on imatinib. One hundred forty-two GIST patients underwent therapeutic drug monitoring from May 2008 to September 2009 at MD Anderson Cancer Center. Imatinib blood plasma levels were measured and minimum concentration or trough levels were calculated. Patient response was also tracked as part of this retrospective, observational study, which included both those with advanced GIST and those receiving adjuvant imatinib (approx. 20%).
