Erin Kristoff

/Erin Kristoff

About Erin Kristoff

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So far Erin Kristoff has created 32 blog entries.

Improving quality of life with SideEQ

Until cures are found, drug therapies are a lifeline to someone with cancer. Yet, the Life Raft Group’s GIST Patient Registry has recorded over 800 reports of patients interrupting their drug therapy usage because side [...]

By | 2018-07-05T21:23:51+00:00 October 20th, 2016|News, Newsletter, Patient Support, Side Effects|

Encouraging rare disease connections at the NORD Conference

The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]

By | 2015-12-16T13:17:02+00:00 December 16th, 2015|Advocacy, Newsletter|

Graduating, Birth, Marriage.What Can’t GISTers do?

Pediatric GISTer, Sile Bao graduated on May 19 and already started her first job at Princeton University in July. Ashley Young Vincent, gave birth to a beautiful baby girl named Lily on June 24. GISTer Mo Collins, married her partner, Alex Skuby on June 25 in a lovely ceremony.

By | 2013-08-14T10:40:36+00:00 August 9th, 2013|Coping with GIST, Member Stories, News, Pediatric GIST|

Who’s laughing now? Actress Mo Collins uses humor in her battle with GIST

Mo Collins is not your typical actress/comedienne, because Mo Collins is a GIST survivor. Keep reading to learn more about Mo Collins and her fight against GIST. Mo is using this gift in a very selfless way by organizing a comedy fundraiser for the Life Raft Group and GIST research.

By | 2014-09-14T11:30:49+00:00 April 1st, 2013|Advocacy, Member Stories, News|

Recent Posts

Upcoming Events

  1. Sarcoma & GIST: Education Symposium

    September 29 @ 9:00 AM - 2:45 PM
  2. Michigan GDOL 2018

    Michigan GDOL 2018

    October 27 @ 8:00 AM - 3:00 PM
  3. NTFC

    Night to Fight Cancer

    November 7 @ 6:00 PM - 11:00 PM