Erin Kristoff

About Erin Kristoff

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So far Erin Kristoff has created 27 blog entries.

Improving quality of life with SideEQ

Until cures are found, drug therapies are a lifeline to someone with cancer. Yet, the Life Raft Group’s GIST Patient Registry has recorded over 800 reports of patients interrupting their drug therapy usage because [...]

By |2018-10-30T09:29:20-04:00October 20th, 2016|News, Newsletter, Patient Support, Side Effects|

Encouraging Rare Disease Connections at the NORD Conference

The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]

By |2018-10-30T11:39:34-04:00December 16th, 2015|Advocacy, Newsletter|

Graduating, Birth, Marriage. What Can’t GISTers do?

Pediatric GISTer, Sile Bao graduated on May 19 and already started her first job at Princeton University in July. Ashley Young Vincent, gave birth to a beautiful baby girl named Lily on June 24. GISTer Mo Collins, married her partner, Alex Skuby on June 25 in a lovely ceremony.

By |2019-11-08T10:15:52-05:00August 9th, 2013|Coping with GIST, Member Stories, News, Pediatric GIST|

Who’s laughing now? Actress Mo Collins uses humor in her battle with GIST

Mo Collins is not your typical actress/comedienne, because Mo Collins is a GIST survivor. Keep reading to learn more about Mo Collins and her fight against GIST. Mo is using this gift in a very selfless way by organizing a comedy fundraiser for the Life Raft Group and GIST research.

By |2019-09-20T12:49:27-04:00April 1st, 2013|Advocacy, Member Stories, News|
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