The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
FDA asks ARIAD to suspend marketing and sales of Iclusig (ponatinib)
The U.S. Food and Drug Administration (FDA) has asked ARIAD Pharmaceuticals, the manufacturer of Iclusig (ponatinib) to suspend marketing and sales of [...]
Stivarga Approved for Canadian GIST Patients
Health Canada has expanded approval for the use of Stivarga to fight Gastrointestinal Stromal Tumours (GIST), according to an article from CNW. Bayer [...]
AACR Releases 2013 Cancer Progress Report
The AACR has released it's 2013 Cancer Progress report. The report is a comprehensive educational tool that illustrates the return on investments in [...]
5 Tips to Tell Your Kids You Have GIST
Telling your children you have GIST can be a stressful time. Here are 5 tips to help you tell your kids you [...]
ARIAD Ponatinib Trial Pauses Accepting New Patients
ARIAD has announced that their ponatinib (Iclusig) trial, which some GIST patients are participating in, has paused new enrollment based on consultations with [...]
Clinical Trial Patients Impacted by Government Shutdown
Hundreds of patients are admitted to new clinical trials administered by the U.S. government. Since the government shutdown is going on it's [...]
What you need to know about the Affordable Care Act
A pivotal moment in U.S. healthcare has begun today, October 1. The Affordable Care Act, which was passed in 2010, is now [...]
FDA Warns of Rare Acetaminophen Risks
A recent report from the FDA reveals that Acetaminophen can cause serious skin reactions in rare occasions. Acetaminophen helps to reduce pain [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
