The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Reasons why GISTer’s are on no treatment
One of the frequently asked questions from the GIST Community is “Why are there some GIST patients who do not take any medication to treat GIST?”
Caregiver support group in Illinois
After her husband Bill was diagnosed with GIST in November 2010, Marlene and Bill entered the frightening and confusing world of doctors, hospitals, treatments and uncertainty.
The Life Raft Group Attends 18th Annual CTOS Meeting in NYC
From October 30th to November 2nd the Life Raft Group staff members attended the annual Connective Tissue Oncology Society (CTOS) Meeting in NYC.
IRBs and the LRG Patient Registry
Institutional Review Boards (IRBs) are the core of the well-established U.S. system for the protection of human research participants.
Kie Go Turns Knowledge Into Action
In early 2012, I was having gastric discomfort, so I took over-the-counter medication and it seemed to feel better.
WE are the CURE – GIST is the Paradigm
Over the past seven years, thanks to the dedication and support of the GIST community, the LRG Research Team has challenged [...]
Dr. Brian Rubin Says LRG Research Team will Cure GIST
Dr. Brian Rubin of the LRG Research Clinic in Cleveland talks about the research we are able to do because of our amazing research team. He goes on to state that it is only a matter of time before we cure GIST. Our only obstacle is funding.
Pregnancy Outcomes in Patients with CML Treated with Imatinib
Is pregnancy for me?, is a common question among GIST patients. At present there isn't a lot of data on pregnancy [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
