Magda Sarnas

/Magda Sarnas

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So far Magda Sarnas has created 6 blog entries.

State of the GIST Community Part 3: What do we know about mutational testing?

As of May 1, 2011, the LRG patient registry only received 377 reports of mutations out of 1,327 patients, which only represents 28 percent of the entire registry. Part of this may be related to the fact that mutational testing is not common practice at diagnosis.

By |2014-09-17T10:15:15+00:00June 1st, 2011|Mutational Testing, News|

State of the GIST community: Life Raft Group’s patient registry demographics

As of December 31, 2010 the Life Raft Group’s Patient Registry has now accounted for 1,279 cases of GIST. The members of this registry have reported their clinical information to us as it pertains to their treatment of GIST. Of these 1,279 cases, we are here to report some key demographics that will help you understand who is a part of Life Raft Group GIST Community.

By |2014-09-17T10:15:34+00:00February 1st, 2011|News, Patient Registry|

LRG uses registry & “GISTory” to help patients in a new way

The LRG uses registry & “GISTory” to help patients in a new way. Many of you who participate in the Life Raft Group’s Patient Registry may have received our monthly plea to help us update our [...]

By |2013-06-18T11:06:38+00:00December 1st, 2009|News, Patient Registry, Patient Support|

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