The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Join Our Tissue Bank – Help the LRG Find A Cure
Join our Tissue Bank - Help the LRG in the search for a cure. Wildtype GIST tissue is needed for a current LRG Research Team project. If you or a loved one are a wildtype GIST patient, please help the LRG Research Team in its search for the cure by donating your tissue.
‘Buddy’ Coats Jr. passes away
Clarence Charles “Buddy” Coats Jr., 65, of Jeffersonville, Indiana, died Sunday, April 22, 2012, at his home. He was buried in Walnut [...]
Audit report gives glimpse into priorities
Every year, the Life Raft Group’s financial statements are audited, providing a glimpse into the priorities of the organization. Audited results for 2012 will be received soon.
Bulgarian GIST group increases reach
My name is Juliana Popova and I’m the chairperson of the Bulgarian support group for people with GIST – “GIST Alliance for [...]
Around the World…Chile Edition
Piga Fernandez, the LRG’s global relations coordinator, participated in an activity called “I have cancer, …lets talk” organized by Red [...]
Carol Heller to be local leader in Eastern Pennsylvania
Carol Heller will be working with Jeff Bernstein to cover the state of Pennsylvania as local group leaders. She is very excited [...]
First report of a GIST patient responding to a BRAF inhibitor
First report of a GIST patient responding to a BRAF inhibitor. Dr. Gerald Falchook and colleagues at MD Anderson Cancer Center provided the first report of a GIST patient responding to a BRAF inhibitor. The BRAF gene is frequently mutated in melanoma and BRAF inhibitors provide one of the most important therapies available for melanoma patients
LRG Urges Governor Christie to Restore Cancer Funding
The LRG is continually involved in advocacy efforts to increase government spending on cancer research. We have joined forces with other cancer agencies to once again urge Governor Chris Christie and the New Jersey Legislature to restore the $1 million budget appropriation
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
