The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Hereditary GIST explained
This article explains hereditary GIST. Familial cancer syndrome is a genetic condition that causes an increased risk for specific types of [...]
FDA Approves Gleevec to Prevent Recurrence of Rare Gastrointestinal Cancer
Gleevec was approved by the Food and Drug Administration (FDA) to prevent Gastrointestinal Cancer(imatinib mesylate) for a new indication. This will keeping [...]
Fifth LRG Poker Tournament a Success
On November 20, 2008, the LRG held its Fifth Annual Poker Tournament at the Midtown Loft on Fifth Avenue in New York City. It is always a remarkable evening and has become a muchlooked- forward-to event for LRG staff and supporters.
Interpreting research: dilemmas facing patients and physicians
Interpreting research: dilemmas facing patients and physicians. Recently, GIST discussion groups have debated the value of the LRG study that examined dosage levels [...]
On the road with the LRG
In the span of a few weeks, representatives from the LRG traveled all over the country to attend events and gatherings relevant to the GIST community.
GIST Cancer – When is Enough Enough?
Jodi Merry wrote this editorial about GIST Cancer titled When is Enough Enough?
Antioxidants: Useful Supplements or Should We Refrain?
Under different forms, antioxidants are in wide use among health-conscious people and even more so among cancer patients. They take the form of such dietary supplements as Vitamin C, E and A, beta-carotene, lycopene, selenium, ginger (Zingiber officinale), cucurmin (turmeric), or pomegranate juice.
The role of CT and PET scans in the evaluation of GIST
This is a follow-up to an article published in the May 2008 newsletter highlighting the benefits and risks involved in MRIs, PET [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
