The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Thrive with More Support!
The LRG offers many options for support. Manned by our volunteers, we have an private, online discussion forum, two private Facebook discussion groups, a mentor program, and regularly scheduled online support group meetings for patients and caregivers.
It’s Time to Tell The Stories: Our Good News – Piga
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Piga Fernandez shares about Global Impact.
CTOS Summary
David Josephy, PhD, of LRG Canada, shares his summary of the GIST-relevant presentations at CTOS.
It’s Time to Tell The Stories: Our Good News – Research – Dr. Sicklick
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Dr. Jason Sicklick discusses his research in SDH-deficient GIST.
It’s Time to Tell The Stories: Our Good News – Research -Patient Registry
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. The LRG GIST Patient Registry is today's focus.
It’s Time to Tell The Stories: Our Good News – Research
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Research is this week's focus.
It’s Time to Tell The Stories: Our Good News – Jim
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Jim Hughes talks about research.
It’s Time to Tell The Stories: Our Good News – Donate Today
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." Your donations help us create events to educate and empower our LRG community. Exec Director Sara Rothschild shares her appeal.
GLOBAL PARTNERS & AFFILIATIONS
