The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
A Caregiver’s Insights on GIST Care – Erawati Bawle
Erawati Bawle shares her insights on her husband's journey with GIST and reflects on the quality of medical care he received and a clinician's responsibility for their patients with the hope that it will give others clarity for their journey.
New Members Appointed to LRG Board of Directors
The LRG welcomes three new members to its Board of Directors: Pat Bonda-Swenson, Santy DiSabatino and Bill Borwegen.
Caregiver of the Month for March: Thanatcha Cholpradit
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. It's Time to Tell the Stories! Thanatcha Cholpradit shares her story.
We stand with Ukraine. We stand with cancer patients.
International access to cancer treatment can be challenging. Access to effective treatment in a time of war provides a an even more daunting challenge.
Rare Cancers: Great Unmet Medical Needs
Join medical professionals and the patient advocacy community on Tuesday, April 26, 2022 for a CME conference, “Rare Cancers: Great Unmet Medical Needs” hosted by Columbia University Herbert Irving Comprehensive Cancer Center and the Jed Ian Taxel Foundation for Rare Cancer Research.
The LRG Welcomes New Leadership to Board of Directors
The Life Raft Group welcomes new leadership to the our Board of Directors.
The LRG Welcomes Dr. Neeta Somaiah to Medical Advisory Board
The Life Raft Group welcomes our newest Medical Advisory Board (MAB) member Dr. Neeta Somaiah of The University of Texas MD Anderson Cancer Center.
What It Means To Be A GIST Mentor
US GIST Mentor Director, Santy DiSabatino, shares what having a Mentor means to the newly diagnosed and what being a GIST Mentor means to him and he makes an appeal for more volunteers to mentor LRG patients and caregivers.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
