The Life Raft Group 2018-07-17T12:18:36+00:00

OUR MISSION:

Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

These are our Core Values:

Real World Evidence In Action

PROJECT InterGR

Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. Project InterGR, the LRG’s approach to research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.

RECENT LRG DATA

0
Patients in LRG Registry
0%
of Patient Registry members know their mutation
0
Total # of Tissue
0%
of LRG members know their Risk of Recurrence

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Join The Life Raft Group.

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Available GIST clinical trials.

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Search our database of GIST Specialists.

View Specialists
Dr. Monica Anderson

Dr. Monica Anderson

Diagnosed in 2012 with Adult GIST.

Marc Wasserman

Marc Wasserman

Diagnosed in 2006 with Adult GIST.

Bella Rocco

Bella Rocco

Diagnosed in 2009 with Pediatric
(SDH-Deficient) GIST.

HELP US SAVE LIVES

The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help, we always need patient tissue and data in our registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.

SHARE YOUR DATA
DONATE TO THE LRG
VOLUNTEER YOUR TIME
CONTRIBUTE YOUR TISSUE

Patient of the Month: Santy DiSabatino

By | July 11th, 2018|

As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each [...]

  • GAD Latin America Campaign

Latin America Celebrates GIST Awareness Day 2018

By | July 9th, 2018|

Alianza GIST and Fundacion GIST Chile are going all out to raise awareness for GIST Awareness Day. Launched in 2014, GIST [...]

  • Werners family

The Werners – Finding the New Normal Living with Wildtype GIST

By | June 29th, 2018|

Left to right: Arianna, Tiffany, Cameron, Bryce and Chris Werner Bryce Werner was a regular middle-schooler living an average [...]

Michigan GDOL 2018

October 27 @ 8:00 AM - 3:00 PM

Keep up with the latest news, events, and opportunities to help.

To contact The Life Raft Group, please call 973-837-9092

Recent Posts

Upcoming Events

  1. Michigan GDOL 2018

    October 27 @ 8:00 AM - 3:00 PM