The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Medicare Open Enrollment Period Ends December 7th
Concerning Medicare Open Enrollment: It is especially important for GIST patients to carefully consider available plans, as one of the financial support resources that has been available through Novartis Pharmaceuticals will end on January 1, 2021.
Patient of the Month for December: Leslie Pastén Rojas
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Leslie Pastén Rojas shares her story.
Paciente del mes de diciembre: Leslie Pastén Rojas
Cada miembro tiene una historia única, pero todos reflejan el coraje intrínseco de quien enfrenta el desafío de GIST. Leslie Pastén Rojas comparte su historia.
Dr. Thomas Mühlenberg Receives 2020 GIST Award
The 2020 GIST award goes to Dr. Thomas Mühlenberg of the University of Duisburg-Essen The GIST Group Switzerland, the support group [...]
Words of Wisdom from Women in Sarcoma
We asked the amazing honorees of the first annual Women in Sarcoma Gala some personal questions to help us learn more about them, and their experiences. Have you RSVP'd for the Gala on Dec. 10 at 6PM ET? RSVP today for this free, virtual event, to be held in loving memory of GISTer Nikki Morales.
Life Raft Group Participates in Virtual CTOS Conference
The annual meeting of CTOS (Connective Tissue Oncology Society) will be held virtually this year due to the global pandemic.
Recognizing Our Women in Sarcoma Gala Honorees 2020
The Women in Sarcoma Gala, the culmination of the Women in Sarcoma series for 2020, will recognize medical professionals who have made an exceptional difference in the lives of GIST patients and their families. In addition, we will also honor two amazing sarcoma patients who have met the challenge their disease presented and have gone above and beyond to make a difference in the rare disease community.
Honoring the Memory of Nikki Morales – the Women in Sarcoma Gala
Join us for the first virtual annual Women in Sarcoma Gala in loving memory of Nikki Morales. Nikki Morales was a patient advocate, philanthropist, public speaker, volunteer, and an inspiration for so many within the sarcoma community.
GLOBAL PARTNERS & AFFILIATIONS
