The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Coping During the Holidays
The holiday season is a time filled with festive gatherings, family traditions, and social expectations, but it can be challenging for individuals with a rare disease. Read more for some tips to have a joyful, peaceful season.
Give Hope for the Holidays!
For rare disease patients, hope becomes more than a feeling; it’s a vital part of the journey. During the holidays, this sense of hope carries a unique importance. Our Hope for the Holidays campaign will bring you stories of hope & resilience.
Removing Roadblocks to a Cure – GISTT Summit 2024
Roadblocks to a cure - a review of first GISTT Summit 2024 in Essen, Germany by participant LRG Data Analyst Jerry Call.
Patient of the Month – October 2024: Amber Santiago
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Amber Santiago shares her story.
The Life Raft Group Launches New Liposarcoma Support Network
The Life Raft Group Launches New Liposarcoma Support Network for Patients & Caregivers.
ESMO 2024 Summary
ESMO 2024 Summary
Patient of the Month – September 2024: Susan Franze
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Susan Franze shares her story.
Annual Bigman & Etzi Memorial Tailgate Raises Funds for The Life Raft Group
The family and friends of late LRG Board member Eric Biegansky. Eric's wife, Jill, and his kids, Ryan and Emma, along with dozens of Eric's friends gathered for a fundraiser in his memory.
GLOBAL PARTNERS & AFFILIATIONS
