The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Patient of the Month for January: Theresa Rogers
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each [...]
Faces of Courage – Eve Evidon
My GIST Journey In early December 2008, I acknowledged that my stomach was not feeling normal. I felt better when I [...]
Coping for Caregivers – Preparing for a Hospital Stay
Caring for a loved one is filled with day-to-day stressors. But what about the stressors that are out of the ordinary? [...]
Chile Cancer March Brings Change – Advocacy in Action!
Patients and Caregivers March! On December 4, 2018, President Sebastián Piñera, of Chile, signed the National Cancer Plan 2018 – 2028 [...]
New in SDH-Deficient Research – The Paraganglioma* Preclinical Project
The Pediatric SDH-Deficient GIST Consortium, which was launched at the Biden Cancer Summit, consists of an impressive team of researchers, clinicians, [...]
Global Representative Spotlight – Verónica Armand Ugón, Uruguay
I am 45 years old and I live in Tarariras, a small city of Colonia, Uruguay. I am married and I [...]
Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
Patient of the Month for December: Wanda Sebestin
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
