The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Faces of Courage
For our 2018 Holiday Campaign our theme is you. The Faces of Courage. We will be featuring some stories throughout the [...]
Faces of Courage Holiday Campaign Launches on #GivingTuesday
Today is Giving Tuesday. #GIVINGTUESDAY is an opportunity to come together as a community to make an impact on the lives [...]
Patient of the Month for November: Greg Crow
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each [...]
Marching for the National Cancer Law in Chile
Our Global Consultant, Piga Fernández, Executive Director of Fundación GIST Chile has asked us to help support the passage of the National Cancer Law [...]
The Healing Power of Adventure
A cancer diagnosis at any age is life-changing, daunting, and difficult. It can be especially challenging for young adults, people ages 18-39, who are dealing with cancer while also navigating college, first careers, new relationships, starting families, and other young adult milestones. Every year, 70,000 young adults are diagnosed with cancer, and that doesn’t include those diagnosed as children who are now young adult survivors and thrivers. As a young adult with cancer, I know it can be hard finding other people who “get it.”
The Magic of Clinical Trial Math
How to Make 2/3 = 1 (100%) In a recent discussion about the frequency of mutations in GIST, we noted that [...]
Flu Season 2018-2019 Updates
Fall is finally here, and with it comes the onset of Flu Season. Flu is a difficult illness for everyone, but [...]
Patient of the Month for October: Jon P. Treder
Patient of the Month: October As part of our Faces of Courage Series, we are featuring a patient of [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
