The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Loxo Oncology Announces Plans for LOXO-101
In a recent press release, Loxo Oncology announced an update on the status of their TRK (tropomyosin receptor kinase) inhibitor drug, [...]
7th Annual GIST Group Switzerland Prize Awarded to Professor Abbas Agaimy
Left to Right: Martin Wettstein, Dr. Michael Montemurro, Helga Meier Schnorf, Prof. Abbas Agaimy, Prof. Richard Herrmann GIST Group [...]
Seminar for Chilean Patient Organizations Aligns Common Goals
On November 26, 2016, patient advocacy organizations in Chile came together at the School of Medicine at the University of San [...]
Help MaKayla Realize Her Dream: Donate to double patient survival
MaKayla Evens help kick off our holiday campaign. MaKayla Evans was diagnosed with Wild Type GIST in 2011, when [...]
Living a Life of Dignity and Hope: Henzo Kenya
Henzo Kenya is a patient support group made up of CML, GIST and recently added osteosarcoma patients. The need to support [...]
#GivingTuesday Launches the LRG Holiday Campaign
#GivingTuesday, November 29th, is a day dedicated to being generous. In direct contrast to #BlackFriday and #CyberMonday, days that are set [...]
Time for Medicare Comparisons is Here
Melissa Simpson, Senior Program Manager, Center for Benefits Access, National Council on Aging By Melissa Simpson, Senior Program Manager, Center [...]
Using Data to Improve Health in Latin America
As many of you know, The Life Raft Group has developed a sophisticated database to track GIST patients around the world [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
