The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Water of Life: A Night to Remember
The second annual Water of Life whisky fundraiser was a night to remember! This year’s event, hosted by Dr. Matt Lurin [...]
Chris Carley: Goodbye to a Hero
A few weeks ago, Chris Carley lost his battle with GIST and the Life Raft Group lost one of its heroes. He [...]
LRG to Participate in Moonshot Project
On June 29th, LRG Executive Director, Norman Scherzer, will be attending Vice President Joe Biden’s “National Moonshot Summit,” at Howard University. [...]
The LRG Stresses Management of Side Effects
We are in the midst of one of the most exciting times in history to be involved in cancer research. Over [...]
Patients Shall Be Held Harmless
On March 19, 2014, the Centers for Medicare & Medicaid Services (CMS) issued federal guidance on third-party insurance payments for the [...]
Team J’s Ride Across America (RAA) 2016
Members of Team-J's Charity Bicycling Team are planning to bicycle in Ride Across America in support of two causes; Hydrocephalus Awareness [...]
LOXO-101 Holds Promise as Potential Treatment Targeting Solid Tumors
A recent announcement from the University of Texas MD Anderson Cancer Center described a study that shows promise for a potential [...]
Spring Issue of GIST Cancer Journal has Arrived
The Life Raft Group is pleased to announce the release of the ninth issue of The GIST Cancer Journal, the official [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
