The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Henzo Kenya Holds Psychological Support and Wellness Conference
Henzo Kenya, the CML and GIST support organization in Kenya, Africa held a conference at the [...]
GIST Cancer Journal October Issue Has Arrived
The 7th issue of the GIST Cancer Journal, official journal of the LRG and the first academic journal devoted solely to GIST is now available
Mechanisms of Disease Persistence in Gastrointestinal Stromal Tumors
By Tamas Ordog, LRG Research Team, Martin Zörnig and Yujiro Hayashi Dr. Tamas Ordog Gastrointestinal stromal tumors (GIST) represent [...]
Our “Silent Song”
My husband Brian, and I have been married 33 years and have worked together in an 8 x 10 room. Brian has literally been by my side since marriage. When I was diagnosed with Wildtype GIST, we knew this was a journey we’d be taking on together.
GIST Pathology Report: The Key to Understanding Your GIST
After the diagnosis of GIST, a patient should take important steps to learn more about their particular disease so that they may find optimal care and treatment. This can be a very challenging and sometimes overwhelming task. Getting a copy of the surgical pathology report is one of those steps.
Immunotherapy: Game Changing Cancer Treatments
Two recent articles summarize the promise that immunotherapy provides for the future of cancer treatment. Immunotherapy refers to treatments that aid [...]
Institute of Medicine Report Findings on Diagnostic Error
A recent report from the Institute of Medicine (IOM), Improving Diagnosis in Healthcare, outlines findings on the state of diagnostic error [...]
Logistic Toxicity: A Concern for Cancer Patients and Caregivers
A cancer diagnosis is overwhelming for both the patient and their caregivers. There is so much to absorb: the emotions, the [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
