The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Advocacy in Chile: An Update
Above Left to Right: Piga Fernandez, Health Minister Carmen Castillo Taucher, President Michelle Bachelet We reported previously on the advocacy work being [...]
On the Road with Milly: LRG Takes the Hill
Hi friends,The day has come. Our GIST Advocacy Avengers (it's a working title) have been prepped, scheduled and prepped some more in [...]
On the road with Milly: Live from Washington – Training for the Hill
Live From Washington- Training for the Hill By Mildred Menos Hi friends (see how close we've gotten already?), Your trusty reporter [...]
On the road with Milly: LRG Advocates in Washington, DC
Live from Washington By Mildred Menos Hi Guys, Some of you may know me from hosting GDOLs (GIST Days of Learning [...]
Device Developed at MIT Helps Determine Targeted Drug Treatment
With precision medicine an accepted paradigm in cancer treatment, finding the right targeted drug treatment for each patient can prove challenging. [...]
International Seminar on Cancer Policies in South America
In Santiago, Chile, on April 22, 2015, The Chilean Health Ministry (MINSAL) organized a seminar to discuss regional policies for cancer [...]
GIST Cancer Journal Spring Issue Out!
The 5th issue of the GIST Cancer Journal, official journal of the LRG and the first academic journal devoted solely to GIST is now available
Importance of Therapeutic Drug Monitoring for Targeted Therapies
As personalized medicine has become an accepted paradigm, it may be time for oncologists to examine personalized dose levels.In a recent article [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
