The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Fundacion GIST Advocates for Rare Disease Day In Mexico
LRG's Rodrigo Salas, member of the Board of Directors, was interviewed on Televisa Monterrey as part of Fundacion GIST Mexico's citizen [...]
GIST 31 wishes highlight the holiday season: Days 24-31
GIST 31 Wishes...what does that mean? Every day, whether consciously or not, we make a wish for the future. Something we hope [...]
Alia Coleman: To Know Fear and to Overcome It
Alia Coleman, a Pediatric GISTer, has known fear, and works at overcoming it daily. She is an inspiration to us all. [...]
GIST 31 wishes light the holiday season – Days 17-23
GIST 31 Wishes...what does that mean? Every day, whether consciously or not, we make a wish for the future. Something we hope [...]
Artist Ellen Mayer featured in Hope Murals Project
Ellen Mayer, LRG member, recently participated in the Lilly Oncology On Canvas Art Competition in Vanderbilt Hall in Grand Central Station. [...]
GIST 31 wishes light the holiday season – Days 9-16
GIST 31 Wishes...what does that mean? Every day, whether consciously or not, we make a wish for the future. Something we hope [...]
Life Raft group Attends Partnering for Cures Meeting
The sixth annual Partnering for Cures meeting sponsored by FasterCures was held November 16-18 in New York City. Over 1,000 attendees from [...]
Plasma Level Testing for Imatinib Now Available
Saladax Biomedical, a CLIA certified laboratory based in Bethlehem, Pennsylvania, is now providing plasma level testing for imatinib.(Gleevec). Testing is currently [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
