The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
GIST 31 Wishes Coming True: Welcoming New State Leaders
Wishes do come true. As part of our GIST 31 Wishes campaign, Assistant Program Director Mildred Menos’ wish was for every state [...]
Life Raft Group Attends Partnering For Cures Meeting
The sixth annual Partnering for Cures meeting sponsored by FasterCures was held November 16-18 in New York City. Over 1,000 attendees [...]
2015 GDOL Series Kicks off in San Diego
Dr. Jason Sicklick On Saturday, January 24, the Moores Cancer Center in sunny San Diego played host to the first [...]
Dating with GIST: Navigating The Waters
Reprinted and revised from the February, 2011 LRG Newsletter. With Valentine’s Day looming, thoughts turn to relationships. There are often unrealistic [...]
UK Pulls Stivarga From Cancer Drug Fund Endangering GIST Patients
The National Health Service (NHS) in the United Kingdom has announced plans to halt funding through the Cancer Drug Fund for regorafenib [...]
GIST Cancer Journal Winter Issue Out!
The Life Raft Group is pleased to announce the release of the fourth issue of The GIST Cancer Journal, the official journal of [...]
Protein Complex Believed To Be Cancer-Causing Gene
A recent study from MD Anderson provides insight into a protein complex that plays a significant role in cancer.In the study at [...]
Clinical Registry Study Planned by ASCO
American Society of Clinical Oncology (ASCO) is planning its first-ever clinical registry study, the Targeted Agent and Profiling Utilization Registry (TAPUR). [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
