All patients with SDH-deficient GIST (stains SDHB negative) are advised to see an SDH-deficient GIST specialist. Oncologists and/or surgeons that specialize in this rare disease are listed below.

For full list of GIST Specialists both International and in the U.S. click below.

GIST Specialists database
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Oncologists & Surgeons Specializing in SDH-deficient GIST

United States

Adult

Sosipatros Boikos – Oncologist
Virginia Commonwealth University, Massey Cancer Center, Dalton Oncology Clinic, 401 College Street, Richmond, VA  23298
804-828-9992

Suzanne George – Oncologist
Dana-Farber Cancer Institute, 450 Brookline Avenue, Suite D 1212, Boston, MA  02215-5418
617-632-3000

Mike Heinrich – Oncologist
Portland VA Medical Center, 3710 S.W. Veterans Hospital Road, R&D 19, Portland, OR  97201
503-220-3405

Jason Sicklick – Surgeon
Univeristy of California, San Diego, 3855 Health Sciences Drive, #0987, La Jolla, CA   92093-0987
858-657-7000

Jon Trent – Oncologist
Sylvester Comprehensive Cancer Center, The University of Miami Sarcoma Multidisciplinary Program,
1475 NW 12th Avenue, Suite 3513, Miami, FL  33136-1002
305-243-1287

Margaret von Mehren – Oncologist
Fox Chase Cancer Center 333 Cottman Avenue, Suite C307, Philadelphia, PA 19111-2434
215-728-2600

Pediatric

Katherine Janeway – Oncologist
Dana-Farber Cancer Institute, 44 Binney Street, Boston, MA  02115-6013
617-632-4994

Michael LaQuaglia – Surgeon
Memorial Sloan Kettering Cancer Center, 410 E 68TH Street, H1318, New York, NY  10065
212-639-7002

Alberto Pappo – Oncologist
St. Jude’s Hospital-Pediatric Oncology, 262 Danny Thomas Place, MS 260, Room C6017, Memphis, TN  38105-3678
901-521-9005

Joshua Schiffman – Oncologist
University of Utah Huntsman Cancer Institute, 2000 Circle of Hope, Salt Lake City, UT  84112
801-585-0303

Chris Weldon – Surgeon
Boston Children’s Hospital, 300 Longwood Avenue, Boston, MA  02115
617-355-4503

Pediatric & Adult

John Glod – Oncologist
Branch Clinical Director,
National Cancer Institute Pediatric Oncology Branch
Bethesda, MD

Andrew Blakely – Surgeon
Assistant Research Physician Surgical Oncology Program,
Program Director, Surgical Oncology Research Fellowship,
Center for Cancer Research, National Cancer Institute
Bethesda, MD

International

Adult

Venkata Ramesh Bulusu – Oncologist
Addenbrooke’s Hospital, Cambridge University Hospitals, UK

Maria Pantaleo – Oncologist
University of Bologna, Italy

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