The Pediatric & SDH-Deficient GIST Consortium at the Biden Cancer Summit – 2018
Norman Scherzer
The Life Raft Group
Life Fest 2006 Video Highlights – 2006
Josalin Dunn
Pediatric GIST patient
Dr. Daniel Vasella
CEO of Novartis
David Epstein
President of Novartis Oncology
DNA Methylation and Cancer – 2015
Armando Hasudungan, Professor Susan Clark, Dr Kate Patterson
Garvan Institute of Medical Research
Current Research Findings from the US and European Clinics – 2018
Ruth Casey, MD
Cambridge University Hospitals, UK
The Clinical and Molecular Genetics of Carney-Stratakis Syndrome and Carney Triad – 2018
Constantine Stratakis MD
National Institutes of Health
What a Patient Should Know About Paragangliaoma: For Our Children, For Our Future – 2018
Karel Pacak, MD PhD
National Institutes of Health
Understanding Pediatric and SDH-Deficient GIST – 2018
Lee Helman, MD
Children’s Hospital Los Angeles
Current Research Findings from the US and European Clinics – 2018
Fernanda Arnaldez, MD
National Cancer Institute
Current Research Findings from the US and European Clinics – 2018
Venkata Ramesh Bulusu, MD
Cambridge University Hospitals, UK
What to Expect When Youβre Trying to Expect – 2017
Rosemary OβNeil Semler MA, RN, AOCNS
Memorial Sloan Kettering Cancer Center.
Informative Webcast Sheds Light on Mutational Analysis – 2015
Dr. Christopher Corless
Oregon Health and Science University
Q&A with Panel of Physician Experts – 2018
1. Can you please tell me more about the guadecitabine clinical trial?
View Video
Β 2. How can advocates disseminate quality information about this rare disease to community oncologists?
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3. When should surgery be performed on SDH-Deficient GIST?
View Video
What is SDH, how is it related to cancer, and what can be done about it – 2018
Eyal Gottlieb, MSc, PhD
Technion-Israel Institute of Technology
KIT/PDGRFA Wild Type GIST and Implications for Treatment – 2017
Sosipatros Boikos, MD
Massey Cancer Center
The NIH Pediatric & Wildtype Clinic Presentation – 2016Β
Lee Helman, MD
Childrenβs Hospital Los Angeles
The NIH Pediatric & Wildtype Clinic Presentation – 2012Β
The 9thΒ NIH GIST Clinic Invitational LectureΒ
Lee Helman, MD
Childrenβs Hospital Los Angeles
The NIH Pediatric & Wildtype Clinic Presentation – 2012Β
The 8thΒ NIH GIST Clinic Invitational LectureΒ
FernandaΒ Arnaldez, MD
National Cancer Institute
The NIH Pediatric & Wildtype Clinic Presentation – 2011
The 7th NIH GIST Clinic Invitational Lecture: Living with GIST: Two Young Adults with GIST Share their Personal Struggles and TriumphsΒ
Scott Vogel & Liz Skree
The NIH Pediatric & Wildtype Clinic Presentation – 2011
The 6thΒ NIH GIST Clinic Invitational Lecture
Dr. Heidi Kong
The NIH Pediatric & Wildtype Clinic Presentation – 2010Β
The 5thΒ NIH GIST Clinic Invitational LectureΒ
Paul Meltzer, MD, PhDΒ
National Cancer Institute
The NIH Pediatric & Wildtype Clinic Presentation – 2010Β
The 4thΒ NIH GIST Clinic Invitational LectureΒ
SuΒ Young Kim, MD, PhDΒ
The NIH Pediatric & Wildtype Clinic Presentation – 2009 Β
The 3rd NIH GIST Clinic Invitational Lecture: Genetics Syndromes Associated with KIT or PDGFRA Non-Mutant Pediatric GISTsΒ
Constantine A.Β Stratakis, MDΒ ScID
National Institutes of Health
The NIH Pediatric & Wildtype Clinic Presentation – 2009
The 2nd NIH GIST Clinic Invitational Lecture: IFF-1R antibody trial in patients with Pediatric and wildtype GISTΒ
Katharine Janeway, MD
Harvard Medical School
