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Videos

Life Fest 2006 Video Highlights – 2006

Josalin Dunn
Pediatric GIST patient

Dr. Daniel Vasella
CEO of Novartis

David Epstein
President of Novartis Oncology

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DNA Methylation and Cancer

DNA Methylation and Cancer – 2015

Armando Hasudungan, Professor Susan Clark, Dr Kate Patterson
Garvan Institute of Medical Research

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Understanding Pediatric and SDH-Deficient GIST - Lee Helman, MD

Understanding Pediatric and SDH-Deficient GIST – 2018

Lee Helman, MD
Children’s Hospital Los Angeles

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Current Research Findings from the US and European Clinics - Fernanda Arnaldez, MD

Current Research Findings from the US and European Clinics – 2018

Fernanda Arnaldez, MD
National Cancer Institute

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Current Research Findings from the US and European Clinics - Venkata Ramesh Bulusu, MD

Current Research Findings from the US and European Clinics – 2018

Venkata Ramesh Bulusu, MD
Cambridge University Hospitals, UK

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Webinar Fertility

What to Expect When You’re Trying to Expect – 2017

Rosemary O’Neil Semler MA, RN, AOCNS
Memorial Sloan Kettering Cancer Center.

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Dr. Sicklick's Webcast on Gene Fusions

New Insights into Gene Fusions in GIST – 2017

Dr. Jason Sicklick
Moores Cancer Center

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Dr. Chris Corless

Informative Webcast Sheds Light on Mutational Analysis – 2015

Dr. Christopher Corless
Oregon Health and Science University

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Q&A with Panel of Physician Experts

Q&A with Panel of Physician Experts – 2018

1. Can you please tell me more about the guadecitabine clinical trial?
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 2. How can advocates disseminate quality information about this rare disease to community oncologists?
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3. When should surgery be performed on SDH-Deficient GIST?
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What is SDH, How is it related to cancer and what can be done about it?

What is SDH, how is it related to cancer, and what can be done about it – 2018

Eyal Gottlieb, MSc, PhD
Technion-Israel Institute of Technology

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Gist Day of Learning Miami 2017 Sosipatros Boikos, MD

KIT/PDGRFA Wild Type GIST and Implications for Treatment – 2017

Sosipatros Boikos, MD
Massey Cancer Center

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Presentations

SDH Deficiency Leads to Blockade of αKG Catalyzed Reactions

The NIH Pediatric & Wildtype Clinic Presentation – 2016 

Lee Helman, MD
Children’s Hospital Los Angeles

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Lee Helman GIST Clinic Presentation

The NIH Pediatric & Wildtype Clinic Presentation – 2012 

The 9th NIH GIST Clinic Invitational Lecture 

Lee Helman, MD
Children’s Hospital Los Angeles

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Fernanda Arnaldez GIST Presentation

The NIH Pediatric & Wildtype Clinic Presentation – 2012 

The 8th NIH GIST Clinic Invitational Lecture 

Fernanda Arnaldez, MD
National Cancer Institute

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GIST Clinic Lecture

The NIH Pediatric & Wildtype Clinic Presentation2011

The 7th NIH GIST Clinic Invitational Lecture: Living with GIST: Two Young Adults with GIST Share their Personal Struggles and Triumphs 

Scott Vogel & Liz Skree

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6th NIH GIST Clinic

The NIH Pediatric & Wildtype Clinic Presentation – 2011

The 6th NIH GIST Clinic Invitational Lecture

Dr. Heidi Kong

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GIST Clinic Paul Meltzer

The NIH Pediatric & Wildtype Clinic Presentation – 2010 

The 5th NIH GIST Clinic Invitational Lecture 

Paul Meltzer, MD, PhD 
National Cancer Institute

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GIST Clinic Lecture Su Young Kim

The NIH Pediatric & Wildtype Clinic Presentation – 2010 

The 4th NIH GIST Clinic Invitational Lecture 

Su Young Kim, MD, PhD 

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GIST Clinic Lecture Dr. Stratakis

The NIH Pediatric & Wildtype Clinic Presentation – 2009  

The 3rd NIH GIST Clinic Invitational Lecture: Genetics Syndromes Associated with KIT or PDGFRA Non-Mutant Pediatric GISTs 

Constantine A. Stratakis, MD ScID
National Institutes of Health

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GIST Clinic Katharine Janeway

The NIH Pediatric & Wildtype Clinic Presentation – 2009

The 2nd NIH GIST Clinic Invitational Lecture: IFF-1R antibody trial in patients with Pediatric and wildtype GIST 

Katharine Janeway, MD
Harvard Medical School

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Books

What Is GIST

So what is GIST cancer?

Erin Macbean
GIST Survivor

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What is GIST

What is cancer?

Erin Macbean
GIST Survivor

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Core Values