LRG research team efforts compare well to a bigger and costlier project

How does a $2 million-a-year cancer research effort with a team of nine scientists keep pace with a $100 million-a-year project with a team of 200? Pretty well, it turns out. With the Cancer Genome Atlas project in the news lately—the New York Times recently reported on progress in its colon cancer work—we decided to compare some of its data with that of the Life Raft Group’s Research Team and its D-Day Project. Our research focuses on GIST.

By |2019-09-20T13:33:11-04:00October 1st, 2012|News|
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Ten Tips For Cancer Caregivers

Caring for someone suffering from an illness is hard, there’s no other way to put it. Most of the time it gets easier but in the beginning right after a surgery, it can be very emotionally draining and frightening. Caring for someone you love is even more so as there is an emotional connection, a deep desire to alleviate the pain and suffering we see in the eyes of the person whose bedside we are hovering over.

By |2018-09-12T15:55:51-04:00October 1st, 2012|Caregiver Support, Coping with GIST, News|
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Lee Emerson – In Memoriam

It is with great sadness that another could not slay the dragon called GIST. Lee fought hard, he was calm and steady during the entire battle. He lived with the dragon since July of 2001. He was an athlete; lean and ready, with perseverance and endurance. He tried all the medicines plus radiation but could not hold it at bay.

By |2019-09-20T13:36:54-04:00September 25th, 2012|In Memoriam|
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NIH Clinic shares information on 3 trials

The Clinic is a collaboration between clinicians and researchers to collect data, investigate and develop treatment for Gastrointestinal Stromal Tumor patients who do not have either c-KIT or Platelet -Derived Growth Factor Receptor alpha (PDGFRA) mutations. This includes patients with Carney’s Triad, Carney- Stratakis Dyad, and Wildtype GIST. These tumors frequently stain negatively for a protein called Succinate Dehydrogenase, a condition referred to as being Succinate Dehydrogenasedeficient (SDH-deficient). There are currently three clinical trials in development for this population.

By |2019-09-20T13:54:00-04:00August 1st, 2012|Clinical Trials, News, Pediatric GIST|
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New gene panel takes mutation testing to a new level

A new gene panel takes mutation testing to a new level. The panel tests for mutations in 23 genes at once will help to properly classify wild-type GIST patients.  Working with next generation sequencing [...]

By |2019-09-20T13:54:43-04:00August 1st, 2012|Mutational Testing, News, Pediatric GIST|
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A Dutch youth’s global search for other patients with Carney’s Triad

Since he turned 14, Jasper Smit of the Netherlands has been searching for patients like him. This is very difficult because Carney’s Triad is an extremely rare syndrome. Worldwide there are about 30 known patients with a ‘complete’ Carney’s Triad (GISTs, pulmonary chondromas, paragangliomas). Incomplete Carney’s Triad affects less than 100 patients in the world. This means that they have two of the three types of tumor (mostly GISTs and pulmonary chondromas). In his own words, here is Jasper’s story.

By |2019-09-20T13:56:51-04:00August 1st, 2012|News, Pediatric GIST|
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The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

 

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The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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