Enfermedades raras – “El fin de la odisea diagnóstica”
Alianza GIST and Fundación GIST México invite you to their upcoming Spanish-language webinar in honor of Rare Disease Day, featuring expert insights and patient perspectives.
Conversations with the LRG: A Conversation with the Rarest of the Rare
This webinar is the Life Raft Group's presentation in honor of Rare Disease Day. Rare disease day is an observance held on the last day of February to raise awareness for rare diseases and to help improve access to treatment and medical care.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
#ShowUsYourRare for GIST Awareness Day!
Last year’s inaugural GIST Awareness Day was a huge success, and we know with your help 2015 will be even bigger and better! This year, we’re celebrating GIST Awareness Day by creating a photo mosaic [...]
Advocating for Change: Cancer Breakthroughs Needed
A recent article in Forbes reports that although we are witnessing a time of historic breakthroughs in cancer treatments, we are lagging behind on policy breakthroughs in the development, funding and delivery of excellent cancer [...]
Fundacion GIST Advocates for Rare Disease Day In Mexico
LRG's Rodrigo Salas, member of the Board of Directors, was interviewed on Televisa Monterrey as part of Fundacion GIST Mexico's citizen initiative to have February 28 declared "Rare Disease Day" in their home state [...]
The LRG Celebrates Rare Disease Day
Today is Rare Disease day, and since GIST is a rare disease we felt it important to remind everyone to take action. The Life Raft Group works hard to advocate for & support our members and their loved ones, but we need your help.