On Saturday August 11, in Fundación GIST Chile we celebrated our Fourth Anniversary and the end of the GIST Awareness Campaign: “HAGÁMOSLO POSIBLE”. The audience of 80 participants represented the different health stakeholders from Chile: patient and civil organizations, Ministry of Health, clinical oncologists, investigators, Medical Oncology Society, journalists, and the Chamber of Pharmaceutical Innovation.
We held two panel discussions. The first one was “Public Policies”, in which the speakers were: Senator Carolina Goic, Director of the Cancer Department of the Health Ministry, Dr. María Inés Romero, representing the National Cancer Forum Foundation, Dr. Garreth Owen, Director of Public Policies of Social Organizations Community, and Nicole Romo and Sonia Lira, health journalists.
The speakers of the second panel called “Access, Clinic and Investigation” were: Dr. Bettina Muller, oncologist, President of the Medical Oncology Society, Dr. Marcelo Garrido, GIST specialist, Gabriela Garnham, General Manager of the Society of Medical Devices, Jean Jacques Duhart, Executive Director of the Chilean Chamber of Pharmaceutical Innovation and myself, representing Fundación GIST Chile and ACHAGO (the Chilean association of oncological patient groups).
Both panels were conducted by Pamela Morales, a well-known journalist with wealth of experience in health issues.
Our spokesman, “Luisito”, the main actor of our GIST Awareness video, couldn’t be absent, so he led the whole meeting sitting among the panelists.
Dr. Marcelo Garrido presented the Salud con Datos GIST Patient Registry as an example of a collaborative best practice and he emphasized the importance of the collaborative work done by GIST Argentina, Fundación GIST Mexico, Fundación GIST Chile, and The Life Raft Group.
Some of the main takeaway ideas to MAKE IT POSSIBLE (HAGÁMOSLO POSIBLE):
- Without data it is impossible to take decisions
- Dialogue and collaboration
- More bridges than trenches
- Public-private alliances
- Trust and legitimization among stakeholders
- More clinical investigation, more oncologists
- Develop collaborative practices among different health stakeholders
- Transparency in the process of taking decisions
- Patients at the center
- Cancer: is a State issue
- Public policies with a long-term vision.