Global Representative Spotlight – Verónica Armand Ugón, Uruguay
I am 45 years old and I live in Tarariras, a small city of Colonia, Uruguay. I am married and I have three wonderful children: Matías (18 years old), Tomás (15 years old) and [...]
Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
Patient of the Month for December: Wanda Sebestin
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Patient of the Month for November: Greg Crow
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
The Healing Power of Adventure
A cancer diagnosis at any age is life-changing, daunting, and difficult. It can be especially challenging for young adults, people ages 18-39, who are dealing with cancer while also navigating college, first careers, new relationships, starting families, and other young adult milestones. Every year, 70,000 young adults are diagnosed with cancer, and that doesn’t include those diagnosed as children who are now young adult survivors and thrivers. As a young adult with cancer, I know it can be hard finding other people who “get it.”
Elsie María Hernández Saborío – In Memoriam
A tribute by Michael Josephy, LRG Contributor My dear wife, Elsie María Hernández Saborío, passed away August 7th after a long battle with GIST. I miss her greatly. Elsie was born and raised in [...]
Patient of the Month for October: Jon P. Treder
Patient of the Month: October As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 [...]
Patient of the Month for August: Debi Granus
Patient of the Month: August As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 [...]
Patient of the Month: Santy DiSabatino
Our Patient of the Month for July is Santy DiSabatino. Here is his story: "I remember the first time I heard the word GIST. I was in the recovery room after having a colonoscopy and endoscopy done due to what was perceived as a stomach issue (not truly related to the GIST) and due for a ten-year colonoscopy.
Believe in Hope – A GIST Story
This story is shared by Virginia Terrebonne, GIST Patient and LRG Member, and is part of our Faces of Courage series. My name is Virginia VanMeter Terrebonne. I am a 56-year-old female originally from [...]