Fundacion GIST Advocates for Rare Disease Day In Mexico

LRG's Rodrigo Salas, member of the Board of Directors, was interviewed on Televisa Monterrey as part of Fundacion GIST Mexico's citizen initiative to have February 28 declared "Rare Disease Day" in their home state [...]

By |2018-09-10T08:46:14-04:00January 5th, 2015|Advocacy, Global, News|

PAWS-GIST Cancer Clinic Opens in the UK

Jayne Bressington, Patient Director of the PAWS-GIST Initiative & Trustee of GIST Support UK The first national Pediatric, Adolescent, Wild-type and Syndromic GIST (PAWS GIST) clinic in the United Kingdom was held on [...]

By |2018-07-27T09:29:08-04:00October 24th, 2014|Global, News, Patient Support, Pediatric GIST|

GIST Sarcoma Life Raft Group Canada announces 3rd Annual day of learning

GIST Sarcoma Life Raft Group Canada held its 3rd Annual Day of Learning on October 18, 2014 from 10:00 am to 5:00 pm at the Coast Coal Harbour Hotel in Vancouver, BC. Speakers includes Dr. [...]

By |2019-09-20T15:47:09-04:00October 24th, 2014|Events, GIST Education, Global, News|

Alianza GIST meets in Zurich, Switzerland

Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.

By |2019-09-20T15:49:32-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News, Patient Support|

New Horizons Takes Place in Zurich, Switzerland

With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.

By |2019-09-20T15:49:04-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News|

New Horizons Zurich Meeting Declaration

The 2014 Zurich Declaration Principles for the transition to “Generic Drugs” for GIST (Gastrointestinal Stromal Tumors) Background and Purpose: GIST (Gastrointestinal Stromal Tumor) is a rare sarcoma, with an annual incidence of about 15 persons [...]

By |2019-09-24T12:54:57-04:00June 24th, 2014|Advocacy, Global, Patient Support|
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