Understanding Genomic Testing and SDH-Deficiency in Gastrointestinal Stromal Tumors (GISTs)
Understand why genetic testing is crucial for identifying and managing SDH-deficient GISTs, a rare and often hereditary tumor that requires specialized care.
LRG Advocacy in Action
The Life Raft Group's advocacy during Rare Disease Week secured vital NIH funding for GIST and rare disease research.
GIST Summit 2025 & GIST Day of Learning & a Rodeo
Who knew that the weekend we planned to attend the GIST Summit and GIST Day of Learning in Houston would be the beginning of the annual Houston Livestock Show and Rodeo? Cowboy hats, boots [...]
GIST Summit 2025/GDOL Texas Presentations & Photo Gallery
GIST Summit 2025/GDOL Texas was held at MD Anderson Cancer Center and presentations and photo gallery are now available.
The Power of Advocacy
Patient Advocate Diane Albrecht details how she successfully appealed insurance denials for GIST monitoring with persistence and guidance from The Life Raft Group.
A Tour of Northern Texas
Executive Director Sara Rothschild toured Texas to connect with the GIST community and healthcare professionals, emphasizing patient advocacy.
Know Your Generic!
Learn how generic drugs differ from brand names and why GIST patients should monitor their side effects.
Make Strides Toward a Cure at the Cleveland Marathon!
Join The Life Raft Group at the 2025 Cleveland Marathon to raise awareness and funds for rare disease support, whether you run, walk, or cheer!
GIST On The Road: Jerry Calls Takes Off In May
Follow Jerry Call on his journey across the U.S. to reconnect, explore, and raise funds for The Life Raft Group.
New Collaborative Study on Genomic Testing in SDH‐Deficienct GIST
The LRG and the Pediatric & SDH-Deficient GIST Consortium published a paper this February on Genomic Testing in SDH-deficient GIST.