Cancer research is in trouble.
There is not enough data, tissue or dollars to save lives fast enough.
Cancer research needs heroes.
The LRG can help anyone become a patient-powered hero for cancer research in their own way.
Together, we can save lives.
The LRG has taken what we learned and created a toolkit to drastically increase tissue, data, and funding. Join us over the next few months as we unveil exciting and educational activities to bring together our entire community of patient-powered heroes in a global battle against cancer.
How can you help?
Anyone can become a patient-powered hero: patients, caregivers, concerned friends, family members, organizations, and institutions alike! You can earn your superpowers in many ways: by donating your tissue, submitting your data, donating funds, spreading the word or advocating for tissue collection and increased funding for research.
Why is donating tissue important?
Tissue samples are invaluable to researchers and clinicians. With donated tissue samples, researchers can learn how cancer cells work, which can lead to both the identification of the causes of a specific cancer and finding targets for new drug development.
Mutational testing of your tissue sample is a valuable part of your diagnosis, as it can help identify the most effective treatment plan for you.
For rare diseases such as GIST, tissue is even more important, as the potential population for collecting samples is so small. Every tissue block counts.
Why is patient-powered data vital to research?
The ability to compile and share clinical histories, especially those tied to tissue samples, provides valuable data for your medical team, as well as to researchers evaluating drug efficacy and epidemiological factors. Having the data stored in one central location helps you to track your treatment over time.
Why is research funding so important?
Research funds are limited, especially for rare diseases. Supporting promising new research efforts at major academic institutions such as our recent collaboration with Columbia University Medical Center, analyzing research data, testing tissue, performing next generation genomic sequencing, identifying new treatments and supporting patient education are all costly.
To save lives, we need to invest in promising new targeted therapies and leverage all the clinical know-how we have today until these new treatments are available.
*H.E.R.O. – Help Expedite Research Outcomes