Caregiver of the Month – May 2025: Joyce Holthaus
Every story is unique, reflecting the strength of those caring for loved ones with GIST. Joyce Holthaus shares her GIST story.
Patient of the Month – April 2025: Jimit Mody
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jimit Mody shares his story.
Understanding Genomic Testing and SDH-Deficiency in Gastrointestinal Stromal Tumors (GISTs)
Understand why genetic testing is crucial for identifying and managing SDH-deficient GISTs, a rare and often hereditary tumor that requires specialized care.
LRG Advocacy in Action
The Life Raft Group's advocacy during Rare Disease Week secured vital NIH funding for GIST and rare disease research.
GIST Summit 2025 & GIST Day of Learning & a Rodeo
Who knew that the weekend we planned to attend the GIST Summit and GIST Day of Learning in Houston would be the beginning of the annual Houston Livestock Show and Rodeo? Cowboy hats, boots [...]
GIST Summit 2025/GDOL Texas Presentations & Photo Gallery
GIST Summit 2025/GDOL Texas was held at MD Anderson Cancer Center and presentations and photo gallery are now available.
The Power of Advocacy
Patient Advocate Diane Albrecht details how she successfully appealed insurance denials for GIST monitoring with persistence and guidance from The Life Raft Group.
A Tour of Northern Texas
Executive Director Sara Rothschild toured Texas to connect with the GIST community and healthcare professionals, emphasizing patient advocacy.
Know Your Generic!
Learn how generic drugs differ from brand names and why GIST patients should monitor their side effects.
Make Strides Toward a Cure at the Cleveland Marathon!
Join The Life Raft Group at the 2025 Cleveland Marathon to raise awareness and funds for rare disease support, whether you run, walk, or cheer!