The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Chris Skiff Defies Odds by Running in California Marathon
When Chris Skiff was in elementary school, he “felt the urge to run.” And he has been running ever since. Even after being diagnosed with GIST.
Swiss Meeting Marks Group’s 10th Anniversary
This year’s Swiss GIST meeting on April 19 in Zurich was a special event. The board had started to plan early, as [...]
Clinical Trials – Reforms Discussed to Meet Patient Needs
The conversations about improving clinical trials to better meet the needs of cancer patients continue, with two noteworthy arguments set forth recently. Both arguments address the need to rethink the design of clinical trials.
July Is Sarcoma Awareness Month
Sarcoma Awareness Month is upon us. It was only about a year ago when Maura Cesarini, a longtime Life Raft Group member, [...]
Anxiety Stays Long After Cancer
GIST patients deal with anxiety on a daily basis. A recent article in the New York Times has uncovered that anxiety actually lingers long after cancer.
Juicing can help ensure good nutrition
Juicing can help ensure good nutrition. Making your own juices with a wide variety of fruits and vegetables is one way of getting the vitamins and nutrients your body needs.
LRG researchers publish study on DREAM complex – an important regulator of GIST “cell sleep”
A study about the DREAM complex was published in the June issue of Cancer Research by LRG Research Team members Drs. Anette Duensing and Maria Debiec-Rychter.
Mind-Body Surgery Preparation Reduces Anxiety and Helps Healing
A recent article in CureToday.com revealed a study that shows how mind-body surgery prep may reduce anxiety. Keep reading for more information!
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
