The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
NIH Pediatric & Wildtype Clinic’s ‘Virtual Tumor Board’ Hosted by the LRG
The LRG worked with the NIH to create a collaborative model to serve the needs of Pediatric & SDH patients, hosting a virtual tumor board on June 25th to replace the in-person Pediatric & Wildtype Clinic which the NIH holds annually.
What GISTers Need to Know About Clinical Trials
Dr. David Josephy and Jim Hughes discuss clinical trials for GISTers and what you need to know.
COVID-19 – Resources GIST Patients Need
COVID-19 - Resources GIST Patients Need - Please know that the Life Raft Group is here to support you during this Coronavirus crisis. We will continue our daily services during this time and we will be distributing information and messages of hope through all our communication channels.
Caregiver of the Month for August: Beth Kroll
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Beth Kroll shares her story.
Actualización realizada por dos prestigiosos especialistas internacionales en GIST
Publicado por Colectivo GIST España - Concluimos el mes dedicado a la concienciación del sarcoma & GIST publicando una actualización del tratamiento para los tumores GIST avanzados.
‘Educa GIST’ por Fundación GIST Chile
¿Necesita información sobre el GIST en español? Fundación GIST Chile ha creado un portal educativo sobre los cánceres gastrointestinales, incluido el GIST.
Feis Off! Water of Life Event Hosted by Dr. Matt Lurin
Festival Season is always a fun time in Scotland, and many folks make annual pilgrimages to some of their favorite distilleries including our own Water of Life Host, me, Matthew Lurin. However, in times of pandemics these festivals were cancelled and many fans were unable to take flights and drives and ferries to see their friends.
Q&A with SDH Panel of Experts Yields Promise for the SDH-deficient GIST Community
The Life Raft Group celebrated GIST Awareness Day 2021 by holding an virtual, interactive Q&A session for SDH-deficient GIST patients with leading experts in the field.
GLOBAL PARTNERS & AFFILIATIONS
