The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Marlene Nei – Volunteer, Advocate, and Caregiver
Marlene has been a member of the Life Raft Group since 2011. Marlene has a long history of volunteerism for which she credits her mother who modeled helping anyone and everyone.
Hope & Obstacles Along a GIST Journey
Many GIST patients around the world struggle with getting the treatment they need to survive and thrive. Arun Krishnan’s story illustrates how collaboration between patient groups and doctors across the globe can affect patient survival.
Blueprint Medicines Announces Top-line Results from Phase 3 VOYAGER Trial
Blueprint Medicines Announces Top-line Results from Phase 3 VOYAGER Trial of Avapritinib versus Regorafenib in Patients with Advanced Gastrointestinal Stromal Tumor in patients with locally advanced unresectable or metastatic gastrointestinal stromal tumor (GIST).
GISTEntertainment Virtual Events
The LRG is offering virtual opportunities for you to connect with others and have fun while supporting our goal of raising funds for our GIST Community!
Patient of the Month for April: Linda McFarland
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Linda McFarland shares her story.
Immunocompromised or Immunosuppressed?
During this health epidemic, wondering about being immunocompromised is a valid concern for GIST patients whether NED or on treatment and best practices are outlined in this post as quoted by experts in cancer patient treatment.
Grief in Times of Crisis
You probably are very aware of the anxiety you are feeling since the onset of the COVID-19 pandemic. What you may not be aware of is the other emotion that has been weighing heavily on most of us these days: grief.
Dr. Jerome Adams Shares How to Create a Face Covering
Our Surgeon General, Dr. Jerome Adams, shares ways to create your own face covering in a few easy steps.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
