The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
First Symposium on Personal Control of Genomic Data for Research Held at NIH
Symposium aimed to accelerate cancer research and to make more therapies available to more patients, while also improving our ability to prevent cancer and detect it at an early stage through individual projects.
Across the Border Virtually
The Ottawa GIST Day of Learning (GDOL) was hosted by the Life Raft Group Canada and the LRG's Pete Knox presented on SideEQ virtually.
A Few Minutes with GIST Expert – Dr. Gina D’Amato
Dr. D’Amato’s passion for her patients guides her on this newest leg of her professional journey in Miami with mentor and GIST expert clinician and researcher, Dr. Jonathan Trent.
Global Representative Spotlight
As a representative for the country, I would first like to identify the number of GIST cases in the country. My next task would be to raise awareness about this tumor, and let people realize that it is manageable with medical treatment.
LRG Cookbook Fundraiser
The Life Raft Group’s Outreach & Engagement department is excited to announce that we are launching a LRG community cookbook which will be sold at the upcoming Life Fest in July 2020.
Patient of the Month for October: Joel Sherr
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Joel Sherr shares his story.
17th NIH Pediatric and Wildtype GIST Clinic Held
The 17th Pediatric and Wildtype GIST Clinic was held at the National Institutes of Health in Bethesda, Maryland on September 25-27, 2019. The Clinic was a collaboration amongst researchers, specialists, patient advocates, patients, and family members, with the goal of furthering the knowledge of SDH-deficient Gastrointestinal Stromal (GIST) tumors in order to develop more effective therapies.
Patient of the Month for September: Eric Lindberg
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Eric Lindberg shares his story.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
