The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
GIST Awareness Day – Mumbai, India
Patient Support Group meeting on GIST Awareness Day in Mumbai, India, 2019.
GIST Awareness Day – Argentina, Guatemala, Honduras, Peru
GIST Awareness Day in Argentina, Guatemala, Honduras, and Peru, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Colombia
GIST Awareness Day in Colombia, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Spain
GIST Awareness Day in Spain, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Mexico
GIST Awareness Day in Mexico, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Brazil
GIST Awareness Day in Brazil, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Kenya
GIST Awareness Day in Kenya, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
GIST Awareness Day – Chile
GIST Awareness Day in Chile, 2019. GAD began in 2014 by The Life Raft Group, to raise awareness on GIST worldwide.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
