The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
The Big Easy – Cancelled
The Life Raft Group is pleased to announce that Life Fest 2020 will be held in The Big Easy! SAVE [...]
Un Hígado vivo
Monitoreando la salud del hígado con GIST El hígado (liver), ubicado debajo de la caja toráxica derecha, es el órgano interno [...]
GIST Virtual Tumor Board – LRG Science
PDF is available of LRG Science to print here. An oncologist in Chennai, India, 8,366 miles away from [...]
GIST Laugh Headliner Andrea Shedler Delivers a Comedic Success!
Comedy Fundraiser Raises over $4K for GIST Research March 8th, 2019 marked the night of our first GIST Laugh comedy show [...]
The Life Raft Group Patient Registry in Review 2018
Click on image to see Patient Registry in Review 2018 The Life Raft Group has played an instrumental role [...]
Jonathan Trent, MD, GIST Specialist, Visits Colombia for the First Symposium of Personalized Medicine and Immunotherapy
By Jairo Becerra, Vice President, Fundación GIST Colombia Left to right: Dr. Jorge Otero (Oncologist), Jairo Becerra, (Vice President Fundación [...]
Patient of the Month for March: Cynthia Pearce
As part of our Faces of Courage Series, we are featuring a patient story on the 13th of each month. Why [...]
National Integrated Cancer Control Act Approved in the Philippines
WE DID IT! National Integrated Cancer Control Act is Approved! Contributed by Rod Padua / President, Touched By Max PHILIPPINES In [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
