The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
New Clinical Trials Focus for the LRG in 2024
Starting in January, every Wednesday will be dedicated learning about clinical trial process and to highlighting the groundbreaking clinical trials focused on gastrointestinal stromal tumors (GIST).
Lessons in Thriving with GIST
Australian liaison Donncha Lynch didn’t know much about GIST or The Life Raft Group yet, but he was determined to learn all he could about GIST.
The LRG Impacts GIST Research
Thriving Together also means impacting GIST research for our patient community. The LRG contributes and collaborates in the research arena in many ways.
Thriving Together Holiday Campaign Update – Personal Fundraisers
This fall two GIST advocates answered the call to fundraise and rallied their 'crews' - designing and hosting incredibly successful fundraisers.
GIST Updates from CTOS
During this virtual presentation, Dr. Loong discussed scientific updates relevant to GIST patients that were exhibited at the Connective Tissue Oncology Society (CTOS) conference. A Q&A segment followed Dr. Loong’s presentation.
Night to Fight Cancer 2023 Photo Gallery
Our 20th Annual Night to Fight Cancer (NTFC) fundraiser was held at Midtown Loft & Terrace in NYC on October 19, 2023. View the photo gallery here.
Cooking to Fight Cancer 2023 Photo Gallery
The Cooking to Fight Cancer fundraiser, created by Board Member and GIST Mentor John Abrams was held at Uncorked Kitchen in Aurora, Colorado on Saturday, October 28th.
Know the GIST – Join the Battle with this Birthday Fundraiser!
GIST Mentor David Wolfe is celebrating his birthday this year by holding a fundraiser. Join the battle to know the GIST and raise funds towards GIST research.
GLOBAL PARTNERS & AFFILIATIONS
