The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
National LeioMyoSarcoma Foundation and the Life Raft Group Announce Collaboration
The Life Raft Group is pleased to announce a new collaboration to provide access to our valuable resource tool, [...]
New Data Indicates Imatinib Boosts Long-Term Survival for Some GIST Patients
A significant finding from a newly published study in JAMA Oncology, indicates that nearly one-fourth of GIST patients with advanced disease [...]
The Life Raft Group Patient Registry in Review 2016
The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient [...]
Collaboration Lays the Groundwork for Breakthroughs in GIST
This article originally appeared in the January 30th edition of Cure Today. Less than two decades ago, Gleevec (imatinib) drastically changed [...]
Support From The Heart – Caregiver Suzy Burke
My name is Suzy Hetherton Burke, I’m 66 years old and happily retired! I grew up in New Jersey, graduated from Rosemont [...]
New Study Outlines Novel Approach to Starving Tumors in Sarcomas
A recent study from Washington University School of Medicine in St. Louis outlines a novel approach to starving tumor cells that [...]
LRG and Columbia University Medical Center NewYork Presbyterian in the News
The recent announcement of the research collaboration between the Life Raft Group and Columbia University Medical Center, NewYork Presbyterian has garnered [...]
Population-Based Study of Adolescent and Young Adult GIST Patients
Jason Sicklick, M.D Recent findings from a population-based retrospective cohort study at the at Moores Cancer Center at UC [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
