The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
“Aclarando Dudas” – Respestas de un especialista en GIST
"Aclarando Dudas" - Respestas de un especialista en GIST presentación del Dr. Matias Chacon, June 28, 2017.
Understanding Kidney Disease and GIST
Injury to the kidneys can occur for a variety of reasons in patients with Gastrointestinal Stromal Tumors (GIST). In some cancers, [...]
Advocating for Rare Diseases Law in Chile
Fundacion GIST Chile was invited by the Federation of Rare Diseases in Chile (FECHER) to participate in a meeting where the [...]
GIST Superhero Profile: Cindy Farr
In honor of our H.E.R.O. campaign, we are profiling our GIST Superheroes By Belinda Gist, Guest Contributor Romans 12:12 "Rejoicing in hope; [...]
The Life Raft Group Celebrates 15 Years of Accomplishments
The Life Raft Group became a formal non-profit on June 10, 2002. Begun as a grass roots effort by a group [...]
This is Not the End – A Survivor’s Story
A story about a cancer survivor recently appeared in the Washington Post: “This is not the end; Using immunotherapy and a [...]
GIST Awareness Day (GAD) 2017 – Be a #Hero4Cancer
The LRG is gearing up for our third annual GIST Awareness Day (GAD) on July 13, 2017 with our theme, Be [...]
Latest Issue of the GIST and Sarcoma Journal is Now Available Online
The latest edition of the GIST and Sarcoma Journal is now available online. The GIST and Sarcoma Journal is a [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
