The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Fundacion GIST Chile Expands Advocacy Efforts
On Saturday November 25, GIST Chile, together with FUCOG (Gynecological cancers) held an education session for health related students, patients and [...]
Coping With Grief and Loss
The loss of a loved one leaves a hole in our lives that cannot be filled. Each individual deals with his or [...]
Social Media Helps Rescue Croatian Patient
Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced [...]
NIH Clinic Combines Research, Knowledge, and Hope
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as [...]
In the beginning…Patient-reported outcomes
Patient-reported outcomes is a buzz-phase that we hear a lot these days. At the Life Raft Group, I was recently in [...]
15th Pediatric and Wildtype Clinic Provides Support and Education
The 15th Pediatric and Wildtype GIST Clinic was recently held at the National Institute of Health in Bethesda, Maryland on July [...]
Tips for Summer Safety
Many people love the warm sun, beaches, and gardens, but along with those beautiful summer days comes the threat of sun damage. What does this mean for GIST patients?
GIST Day of Learning – La Jolla
It's not too late to sign up for the GIST Day of Learning (GDOL) in La Jolla/San Diego on July 15th. [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
