The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Mia Byrne Runs Marathon in Tribute to Husband
On Sunday, October 12, 2014, Mia Byrne crossed the finish line of the Chicago Marathon, completing the race in 5:55. It was [...]
Strategies to rapidly identify and validate new therapies for GIST
By Dr. Anette Duensing, University of Pittsburgh Cancer Institute, and Dr. Maria Debiec-Rychter, KU Leuven, Belgium, LRG Research Team Dr. Maria [...]
A bold and important act: Glenita Mungcal’s legacy helps to support research
Glenita Mungcal My mother, Glenita Mungcal, died from her GIST tumor earlier this year. What we thought was a [...]
2014 Night to Fight Cancer is a win for all
Left to right: Jerry Cudzil with winners Gary Narvaez, Brian Behrens, & Shirley Chan Oh, what a night!!! Jerry Cudzil’s 11th [...]
GIST 101 Webcast Delivers the Basics
David Josephy On August 13th the LRG presented its most highly attended webcast to date, “GIST 101: Understanding the [...]
LRG patient registry: powerful tool for patients, physicians and researchers
The time it takes between the appearance of first symptoms of a rare disease and when the correct diagnosis is given, is [...]
PAWS-GIST Cancer Clinic Opens in the UK
Jayne Bressington, Patient Director of the PAWS-GIST Initiative & Trustee of GIST Support UK The first national Pediatric, Adolescent, Wild-type [...]
Giving back: Annual “DeLo” barbecue benefits LRG
The De Lorenzo boys, Gregory John and older brother Simon Joseph On September 6th, Jason De Lorenzo continued his annual [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
