The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Meditation Can Be a Powerful Tool for Relieving Anxiety for Cancer Patients
Meditation has been used for centuries to relax the body and calm the mind. For cancer patients, it can be a powerful tool to help alleviate the fears and anxieties that accompany a cancer diagnosis.
Books Can be Powerful Medicine
Books can be powerful allies in a cancer patient’s journey. Bibliotherapy is a recognized field in psychotherapy, where the printed word can [...]
Depression and Cancer : Shining a Light on an Under Recognized Problem
Although it may seem obvious to patients and caregivers in the cancer community, depression is often a problem that is left [...]
Merck’s Keytruda Approved for Advanced Melanoma Treatment
Advanced Melanoma patients are now able to take a powerful new immuno-cology drug from Merck called Keytruda.
4 Ways to Make a Difference in the Life of a Cancer Patient
There are many ways to make a difference in the life of a cancer patient. We've put together four that can help make a cancer patient's day.
Resources For Cancer Patients And Caregivers
Comprehensive resources for cancer patients and caregivers can be found on Patient Resource’s website. This is valuable information, not only for GIST patients, but also for those who may have friends and loved ones with other diagnoses.
New Cancer Classification System Supports Concept of Personalized Treatment
A new cancer classification system that supports the idea of personalized medicine has been found as a result of a research study by University of California, San Francisco, indicated that more accurate diagnoses could be made based on genetic makeup.
Cancer and Intimacy: Nurturing Relationships
All relationships have to weather storms, but when a couple faces the challenges of cancer treatment, intimacy can suffer. Intimacy can be difficult for any couple, but cancer and intimacy can be an even larger obstacle.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
