SDH in Action!
“You're off to Great Places! Today is your day! Your mountain is waiting, So... get on your way!” ― Dr. Seuss, Oh, The Places You'll Go! Dear SDH-deficient GIST [...]
GIST Virtual Tumor Board – LRG Science
PDF is available of LRG Science to print here. An oncologist in Chennai, India, 8,366 miles away from the Life Raft Group’s Wayne, New Jersey office, is running out of treatment [...]
New in SDH-Deficient Research – The Paraganglioma* Preclinical Project
The Pediatric SDH-Deficient GIST Consortium, which was launched at the Biden Cancer Summit, consists of an impressive team of researchers, clinicians, academics, and patient advocacy groups. A member of our consortium, Dr. Joshua D. [...]
Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
Faces of Courage Holiday Campaign Launches on #GivingTuesday
Today is Giving Tuesday. #GIVINGTUESDAY is an opportunity to come together as a community to make an impact on the lives of GIST patients by helping to ensure their survival. It is a chance [...]
LRG Webcast: What is SDH, How Is It Related to Cancer, and What Can Be Done About It?
SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can 'benefit' from the loss of SDH and continue to [...]
The Life Raft Group Announces an Innovative Consortium to Accelerate Cancer Research at the Biden Cancer Summit
WAYNE, N.J. and WASHINGTON, D.C. (September 21, 2018) - The Life Raft Group announces at the Biden Cancer Summit a new initiative to strengthen and advance research for effective treatments of a rare subset of [...]
A New Lifeline – The Pediatric & SDH-Deficient GIST Consortium
The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research consortium. The Pediatric & SDH-Deficient GIST Consortium, unveiled today at the Biden Cancer Summit, supports patients and caregivers at a critical time to share data, tissue, and resources to address the urgency of cancer treatment.
LRG Webcast: What is SDH…
How Is It Related to Cancer, and What Can Be Done About It? SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some [...]
Mutational Testing and Genetics
So, I’ve been told that I have GIST! Life changes suddenly and profoundly when you receive a cancer diagnosis. It’s normal to experience a state of shock, but there is a practical need to [...]