Breaking Down the Financial Concerns of Living with GIST Presented by Marlene Morales, MSW, Sylvester Comprehensive Cancer Center and Kathy Sarmiento, Alliance for Aging View all Life Fest 2018 Videos [...]
State of GIST: A Clinical Panel of Experts Presented by Jason Sicklick, MD, Moores Cancer Center, University of California, San Diego; and the GIST Experts Panel - Markku Martti Miettinen, MD, National [...]
Patient-provided, patient-focused data from the Patient Registry has been a core component of the LRG’s research model. Out of the foundation of real world data, we conducted a Side Effects Survey in the early [...]
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
The LRG is collaborating with the Biden Cancer Initiative to promote the Biden Cancer Community Summit which will be held on September 21st, 2018, in Washington, D.C. Vice President Joe Biden and Dr. Jill [...]
Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]
Lawrence B. Freed – 6/1/1949 – 2/23/2018 After a long journey with GIST, Lawrence B. Freed passed away Friday, February 23, 2018 surrounded by his loving family. He was the beloved husband of Linda [...]
While Dr. Guhagarkar is a GIST patient, this webcast would benefit anyone who struggles with these issues, regardless of the disease they have. We believe that patients and caregivers sharing their experiences plays an important part in helping fellow patients live better with their disease and side effects.
At its heart, the Life Raft Group is a love story. In this video, Norman Scherzer shares two love stories, and asks us all to continue to keep the spirit of love alive [...]
About Bella At just seven years old, Bella Rocco was undergoing surgery after being diagnosed with a rare form of cancer—pediatric GIST. While GIST is considered a rare cancer, pediatric cases are even [...]
